Our Association

PWS Association (NZ)

Formed in 1989 by a group of five concerned parents, our Association is first and foremost a parent support group providing knowledge, advocacy, and support for all families affected by PWS and all those who work with people who have PWS.

Our purpose is to improve the lives of those affected by PWS and their families. To achieve this the Association offers support, networking, advocacy, information, resources, education and training.

We have a wide range of resources including books, pamphlets, DVD's, booklets, texts, newsletters, and audio tapes. Many of these are from the most recent international conferences.

Parent Contacts

We have parent contacts in all areas and can put you in touch with a family with a similar aged child as your own.

If your child is 0-11 years you can contact Emma McConachy - emma.mcconachy@pws.org.nz

If your child is 11-18 years you can contact Emma McConachy - emma.mcconachy@pws.org.nz

For our adults 18 years + you can contact Cindy Adams-Vining - cindy.adams-vining@pws.org.nz

Or you can call us on 0800  4 PWS HELP (0800 4 7974357)

Annual Events

Each year we we hold a family event where parents, siblings, those with PWS, and their extended family, can meet, talk, attend workshops, listen to experts, and make friends.

Education and Training

The Association is able to offer education and training to early childhood education centres, schools, residential homes and day programmes. If you feel that the professionals working with your child could benefit from such training - get in touch with us. Linda Thornton, our Training and Residential Manager, holds a variety of flexible training sessions across the country, through-out the year.

Email Linda - lindathornton@pws.org.nz  

Newsletter

Our quarterly newsletter, "PWS Downunder" is sent to all members of the Association and includes up-to-date information from New Zealand, Australia and around the world.  You can also view back copies online.

Membership

By becoming a member of the the Association you will receive our quarterly Newsletter, "PWS Downunder" and have voting rights at our Annual General Meetings. Membership is one way you can support our Association and the work that we do. Of course, you do not need to be a member to receive support - just get in touch!

Annual membership is NZD25.00, payable to the Prader-Willi Syndrome Association (NZ) Inc, PO Box 258, Silverdale, Auckland, 0944

For membership enquiries email us: jo.davies@pws.org.nz