Formed in 1989 by a group of five concerned parents, our Association is first and foremost a parent support group providing knowledge, advocacy, and support for all families and those who work with PWS. Membership now stands at approximately 130.
The Association offers an advocacy service to help support you through your child's transition stages - kindergarten, school, secondary schools, special needs, transition into the workforce etc
We have a wide range of resources including pamphlets, videos, tapes, booklets, texts, newsletters, and audio tapes. Many of these are from the most recent Australasian conferences.
We have parent contacts in all areas and can put you in touch with a family with a similar aged child as your own.
Each year we have a family Convention, held at different locations throughout the country. This is usually 2-3 days where parents, siblings, those with PWS, family, can meet, talk, attend workshops, listen to experts, and make friends. We usually hold our Annual General Meeting at the same time as the Convention.
Our quarterly Newsletter, "Pickwick Papers" is sent to all members of the Association and includes up-to-date information from around the world.
Annual subscription is $NZ20.00, payable to the Prader-Willi Syndrome Association (NZ) Inc, P O Box 143, Masterton
Email us: pwsanz@wise.net.nz
Find news articles and conference details here
The Rules of the Prader-Willi Syndrome Association (NZ) Incorporated
Links to other PWS Organisations throughout the world
Background of the PWS Association in New Zealand, its resources, services, and contact.