Our Services

We are a parent support network which aims to enhance the lives of those with Prader-Willi Syndrome by providing support to families and acting as advocates for people with PWS. We also hope to increase public awareness and understanding of PWS. We offer information and support to all families affected by PWS and to those who work with people who have PWS. Here are some of the ways in which we can help:

Education and Training

The Association is able to offer education and training to early childhood education centres, schools, residential homes and day programmes. If you feel that the professionals working with your child could benefit from such training - please get in touch with us. Cindy Adams-Vining, our Residential Training Manager and Family Support Co-ordinator, holds a variety of flexible training sessions across the country, throughout the year.

Email Cindy (Residential Training Manager): cindy@pws.org.nz

Advocacy

The Association provides an advocacy service offering support when needed. Advocacy may be needed at a school meeting or with residential care placements, whatever the situation - we are here to help. Please see the Contact Us page for details on how to get in touch with us.

Resources

We have a range of resources for parents, carers and educators including books, leaflets, DVD's, articles and magazines. Publications can be purchased or downloaded from our website and many are free to families who have a child with PWS. Our publications are being updated and we have plans to produce some new resources - meanwhile, if you can't find what you're looking for, please ask. We are an information service and hope to be able to answer any questions or point you in the right direction. *NEW - PWS Book Library. Our new library service stocks a range of resources - keep checking back as the number of titles available increases!*

Support

The Association offers support at all stages of PWS, from diagnosis to school years to residential care. Please get in touch with us if you have questions, need help or would like to talk with someone. We also have parent contacts in most areas who are happy to meet and support new families. We can put you in touch with a family who has a similar aged child with PWS as your own.
If you have a young child or your child is newly diagnosed with PWS, please contact Karen: ceo@pws.org.nz  If you have a teenage or adult son/daughter with PWS, you can contact our Family Support Co-ordinator, Cindy: cindy@pws.org.nz

Or you can call us on 0800 4 PWS HELP

Events

Each year we hold events such as family camps where parents, siblings, those with PWS, and their extended family, can meet, talk and make friends. Sometimes we are able to offer workshops with expert speakers, and every four years, an Asia-Pacific PWS Conference is held. We will keep you informed of these events through our events page on this website, our e-newsletters, magazines and Facebook.

Keeping in Touch

Our magazine, PWS Downunder, is sent to all members of the Association and includes up-to-date information from New Zealand, Australia and around the world. Back copies are available to read in our resources section. We also keep in touch with monthly e-newsletters - if you wish to subscribe to our mailing list, please contact our Administration Manager. Up to date news and information can also be found on our PWSA Facebook page. You may also be interested in our yahoo chat group for family members of people with PWS or our private Facebook group for people with PWS over 16 years.