Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

About PWS

PWS is a complex genetic disorder presenting with a spectrum of symptoms found listed throughout this website. Individuals may present with less or more of these symptoms, each in varying degrees. The typically occurring symptoms which characterise PWS can be found in ‘What is PWS?‘ below. Further information about symptoms of PWS can be found in the Medical A-Z and Support and Management sections of our website. If you cannot find what you are looking for, please contact us and we will be happy to find useful resources and answer questions.

What is PWS?

The main characteristics of PWS, what causes these characteristics, their genetic origin; plus an overview of basic care and support needs.

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We have tried to provide answers to some of the most frequently asked questions, but please ask us if you cannot find what you are looking for.

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Stages of PWS

Changes in appetite and weight gain are gradual and complex. 5 major phases were outlined in this study of the nutritional phases of PWS.

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Personal Stories

Click here to read some personal stories about living with PWS.

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