Welcome to the Prader-Willi Syndrome Association of New Zealand
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Conferences

PWSA(NZ) has collaborated with PWS Australia on Asia-Pacific PWS Conferences since the first event was held in Wellington in 2008. Subsequent three-yearly conferences were hosted in Australia until 2021, when the collaboration expanded to include Malaysia and Thailand, with the Prader-Willi Research Foundation Australia co-hosting in 2024.
The International PWS Organisation (IPWSO) also holds a conference every three years, hosted by a different member nation, as well as a three-yearly Professional Providers and Caregivers Conference.

UPCOMING CONFERENCES

PWRFA Research And Family Conference, Brisbane

PWRFA Research and Family Conference, Brisbane

Conferences

Pathways Forward: Where Hope Ignites Innovation. Plenary Speakers: Professor Jennifer Miller and Associate Professor Laura de Graaf Programme and Speakers: www.praderwilli.org.au/program Earlybird closing April 21st. Registration: www.praderwilli.org.au/registration

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PAST CONFERENCES

6th Asia Pacific PWS Conference 2024 – Sydney

APPWS2024 was held August 30-31st in Sydney, featuring highly regarded plenary speakers, Prof Tony Holland and Dr Deepan Singh. The Day 1 research programme was put together by PWRFA, highlighting Australian research projects as well as research taking place in other parts of the world. The Day 2 programme covered a range of topics focused on aspects of health, development, supporting families and providers.
Click here to read our conference summary report. Recordings of presentations are now freely available as follows: Day 1 via PWRFA YouTube and Day 2 via PWS Australia

5th Asia Pacific PWS Conference 2021 – Kuala Lumpur

APPWS2021 was held virtually in October 2021, hosted by the PWS Association of Malaysia in Kuala Lumpur, and co-organised by the PWS Associations of Malaysia, New Zealand, Australia and Thailand. You can click here to read about the conference and view the 2021 presentations and slides >

10th IPWSO Conference 2019 – Havana

This conference was held in Cuba in November 2019. It was attended by Dane and Julia Fuller (parents from New Zealand) who interviewed esteemed endocrinologist and PWS expert, Dr. Jennifer Miller. In their interview recording, Dr Miller provides answers to some key questions and offers very useful information for families. Christina Ford, a New Zealand behaviour specialist with Community Connections, gave a presentation at the conference, reflecting on the practice tools and techniques she uses to have conversations in behaviour support and education sessions with a person with PWS when there is a requirement to discuss difficult subject matter. Hayley Arnott, another parent who attended from NZ, has also forwarded the following conference report.

4th Asia-Pacific PWS Conference 2018 – Brisbane

The 4th Asia-Pacific PWS Conference was held in Brisbane, Australia, in October 2018.
Live-stream videos can now be viewed via one of our YouTube playlists.

3rd Asia-Pacific PWS Conference 2015 – Melbourne

The 3rd Asia-Pacific PWS Conference was held in Melbourne, Australia, in April 2015.
Click here to view all the video recordings of the presentations.

PWSA Ireland Conference 2014

Click here to view some of the video recordings from this conference. Dr Hubert Soyer and Dr Suzanne Blichfeldt both discuss healthcare and care services for adults with PWS; Dr Suzanne Cassidy discusses healthcare for children with PWS, and Georgina Loughnan presents on physical therapy.