PWSA (UK) Revised 2007
A collection of stories providing a positive uplift to those who have just received a diagnosis of PWS. These stories show there are many joys to having a child with PWS.
The first stories were told in 2000 and some of those parents have provided an update for this revised edition. Each parent has an individual story to tell.

PWSA (USA) 2015
Compiled by: Diane Seely, Carolyn Loker, Melanie Keller, Janet Li and Karen Vogt
A collection of family stories from the PWSA (USA) publications, The Gathered View.

PWSA (USA) Revised 2011
Written by: Robert H. Wharton M.D., Karen Levine PhD, Maria Fragala PT, Deidre C. Mulchahy Patch M.S., CCC-SLP, with Cinda Ball. Revised by: Lisa Graziano M.A., MFT, Janalee Heinemann MSW, Colette Joncas R.N. and Eric Joncas R.N., Janet Li M.D., Atif Khan M.D., Karen Vogt M.D. and Matthew Vogt
This booklet is intended to help families, early intervention workers and other care providers of children from birth to three with PWS. Contains: a parent’s perspective; key principles to help your child; information about pregnancy, birth and newborns; early intervention for 1 -6 months, therapeutic interventions for 6mths to 2 years and 2 to 3 years; information on brothers, sisters and family life; adapting to life and getting support.

PWSA(UK), Jackie Waters(Ed), 4th rev. 2012. The original version resulted from a 1996 workshop, attended by professionals with an interest in PWS. Now revised with suggestions and input from Prof Tony Holland, Dr Joyce Whittington, Margaret Gellatly (Dietary Adviser), David Palmer (New Directions PWS), Myles Kelly (Gretton Homes), John Booth (PWSA UK) and Kendra Rhodehouse (Outreach & Development Worker), amongst others.
For parents, carers & providers, includes sections: choosing a placement, characteristics of PWS, medical complications, intellectual ability, speech & language, ageing, behaviour, diet, risk factors, ethical issues, carer needs, group homes, supported living, specialist equipment, access to food, individual needs, evaluation & measurement of success, involvement of family and friends, managing staff training & competence, consistency, relationships…

B. J. Goff, 2008
Barbara Goff is an Assoc Prof of Education with 35 yrs experience working with individuals with developmental disabilities in residential, educational, vocational, and home settings. Although this manual is focused primarily on group homes (residential programmes supporting three or more individuals), the same principles apply to any size or type of residential setting. Includes: Characteristics of PWS, Life in the Residence: routine / structure, motivation, health issues, medications, sexuality, nutrition, individual challenge and growth… Behaviour Management Stratgies: environmental management, prevention planning, formal behaviour management programmes…

Urs Eiholzer, 2005
For many years, Urs Eiholzer has been engaged in the care of children with PWS and their families. He’s published a great number of scientific articles, contributions and supports a comprehensive, integrated treatment approach, taking into account both the biological & psychological aspects of the syndrome. An easily understandable book specifically suited to non-professionals and presents the clinical picture of PWS, its genetic cause, latest research results and treatment options. Addresses not only the family members of the affected children, but also those who have contact with them – from the neighbour to the paediatrician. A recommended overview of the syndrome.

Joyce Whittington, Anthony Holland, 2004.
PWS is associated with an assortment of physical, behavioral and cognitive abnormalities that create a broad range of interdisciplinary care needs. The authors identify and integrate the latest findings on managing the complex medical, nutritional, psychological, educational, social and therapeutic needs of people with PWS. Both have been involved in the Cambridge PWS study–the largest of the cohort studies of PWS–which provides the basis of this book.

Presented by Clive Dennis, RN, B of AppSc & Master of Special Ed., 2011
NB. NOT SPECIFIC TO PWS.
Clive is an internationally recognised speaker in the area of Behaviour Management. Over 40,000 people have attended this workshop. This DVD provides a variety of options to prevent and/or reduce the possibility of challenging behaviour occurring. Discuss how to have a proactive rather than reactive approach and how to empower the individual to be more responsible for their own behaviour.

Lisa Graziano, PWS Californian Foundation 2015
Parents of the toddler or young child will learn how to create a foundation that encourages cooperative interactions throughout the lifetime.  Parents and care providers of the older child, teen, or adult will learn strategies that can improve the flow of the day and everyone’s overall quality of life.  No matter what your relationship with the individual with PWS the information provided in this DVD will be immediately beneficial.

Created by Michelle Donaldson and Ruby Gold, 2006.
Produced by PWSA (USA) and the Prader-Willi Californian Foundation to provide teachers with an introduction and overview of the issues associated with PWS and to demonstrate and describe pragmatic strategies that school staff can use in supporting the success of a student with PWS. Includes interview footage with experts and classroom teachers. (Approx. 40 mins.)

Linda Thornton, PWSA(NZ).
Written for teachers, as well as giving guidelines for parents and carers. Includes an overview of PWS, behaviour management, teaching strategies, managing the environment, working with challenging behaviour and anger outbursts, services and support, transition, the future, and employment.

Ministry of Education NZ, 2015
Tamariki reaching their goals no matter what! This book features a short story about one of our NZ families.

Janice Forster (Ed), Pub. Hubert Soyer & Norbert Hodebeck Stuntebeck for IPWSO, 2010.
The proceedings of the 2008 and 2009 International PWS Caregivers’ Conferences. As a reference style resource for those planning services, we only stock 1 copy. It contains over 200 pages of presentations, abstracts and guidelines for presenting standards of care in over 80 nations. A breakthrough guide for service managers, teachers and health care providers. Features guidelines and models developed for use across all environments where people are caring for individuals with PWS.

Valerie Rush Sexton and Debbie Erbe Fortin, 2004
A story of two children with Prader-Willi syndrome (10 and 6) moving through the school day, explaining their difficulties and achievements, whilst highlighting that they are like their classmates. In one scene, Michael is so frightened by a thunderstorm that he disrupts his class and won’t stop talking about the storm. Valerie’s account of that day is retold, showing how she located a book on thunderstorms and started to read. That did the trick. The story was so compelling that Michael asked to take the book home that evening. The book concludes with notes on PWS for the professional and a PWS simulation lesson plan for teachers.
Suitable for all school-aged children, particularly 6-13yrs.