UPCOMING EVENTS

PAST PWSA EVENTS

REGULAR EVENTS

National Family Camps

These are held these every 2 years at different locations around New Zealand. Our camps are for people living with PWS of all ages to attend with their family or a support person.

Young Families Weekends

These are for families with young or newly diagnosed children who have PWS. They are designed to be informal, social events where new families can connect, share experiences, ask questions and feel supported. The programme may also include informal presentations or information sessions. We aim to hold these events every 2-4 years.

Tweens and Teens Weekends

These weekends have a focus on transition and on social opportunities for tweens and teens living with PWS. Adolescence can be a difficult time, so these weekends provide an ideal opportunity to share experiences, support one another, and discuss the future.

Adults living with PWS Events

Our RURU Leadership Group (adults living with PWS) tell us about the support they would like from the PWSA. More social opportunities for adults is usually top of the list. We are listening and aim to facilitate social and leadership weekends as often as we can.

Regional Family Days

We aim to support regional family days in the main centres of New Zealand on an annual basis. We have established regional hub Whatsapp groups and encourage members to arrange an annual get-together. If you are keen to host a local event, whether it’s a Christmas party or a meeting at a local venue, please get in touch because we would be keen to help facilitate your initiatives.