We are a parent support network which aims to enhance the lives of those with Prader-Willi syndrome in New Zealand by providing advocacy, education and support services to all families affected by PWS and to those who work with people who have PWS. We also hope to increase public awareness and understanding of PWS.
We maintain a parent support network and offer support to people with PWS and their whanau. Here are some of the ways we provide this service:
- We can be contacted anytime via our website or freephone helpline for new diagnosis or crisis support.
- We can put families in touch with other families in their area or with families who have a child with PWS of a similar age. Just check the box to indicate you would like us to do this on our membership form.
- We host family support events and aim to hold biennial family camps, biennial young families weekends and youth weekends, plus regular regional family days. Please check our Upcoming Events page.
- We keep in touch via email, Facebook, and facilitate families keeping in touch via our online support group.