Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

Our Publications and Resources

Our Publications and Resources

Our resources are available free of charge for PWSA(NZ) members. If you would like to order resources and are not a member, please see our membership page for a range of free membership options. Please use the order form below to request resources.
If you cannot find the information you are looking for below, or on relevant website pages, please contact us – we would be happy to recommend resources or put a collection together for you.

An Introduction to Prader-Willi Syndrome

This pamphlet provides a brief overview of PWS and how the PWSA can help. Copies are included in our New Parent Pack. They are useful for:

  • neonatal units
  • family, friends, caregivers
  • ECE/schools (all staff)
  • special education / early intervention
  • providers of community activities / clubs / sports
  • medical centres
Medical Alerts book

Pocket-sized guide to carry in case of emergency.

Includes: overview, learning, behaviour, managing the food environment…

Please order from the New Parent Resources page.

FACEBOOK GROUPS

The PWSA(NZ) maintains three Facebook support groups:

NZ Prader-Willi Support Community
A parent support network for primary family carers or guardians of people with PWS.

PWS Matters for All (NZ)
An inclusive group for parents, carers, support workers and for people with PWS.

My PWS Online Network NZ
A chat group for people aged 16+ who have PWS and live in New Zealand (or Australia.) Teens can join from age 13 with parent permission.

RESOURCE REQUEST FORM

DOWNLOAD RESOURCES

PWSA(NZ) Information Resources:

Other General Information Resources: