Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

Support & Management

If you cannot find what you are looking for on these pages, please contact us. Our staff may be able to provide useful resources and help with any questions.

Early Years

Advice on feeding and weaning infants, support available, reaching milestones, therapeutical interventions, plus information on health concerns affecting young children.

Read More >

Dietary Management

Information on diets used in PWS, plus strategies and tips for managing food preoccupation and food seeking behaviour.

Read More >

School Support

A guide to learning support funding, intellectual abilities, typical learning strengths and weaknesses in PWS, plus teacher tips for managing learning and behaviour at school.

Read More >

Behaviour

Consistent, positive behaviour management strategies usually work well, but sometimes behaviour can be difficult to manage and these management strategies may help.

Read More >

Mental Health

Information about mental health issues which can occur in PWS.

Read More >

Transition to Adulthood

How to prepare for leaving school, further education, employment and greater independence during adolescence.

Read More >

Sexual Development

Information about puberty, sexuality, fertility and discussion about relationships.

Read More >

Supported Living

Many adults with PWS live in a residential care setting or have supported living arrangements. Information can be found here for both parents and service providers.

Read More >

For Family andĀ Friends

A PWS diagnosis can overwhelm grandparents too. This page offers suggestions for grandparents, family and friends on how you can help support the person with PWS and their family.

Read More >

ForĀ People with PWS

On this page you can learn from people with PWS. You will find inspirational stories and videos by people with PWS. You will also find where to get support, resources and how to get in touch with others with PWS.

Read More >

Siblings

Having a sibling with PWS can make family life quite different and family stress levels are often raised. This page discusses how siblings can be affected and offers support.

Read More >