Prader-Willi Syndrome (PWS) is a rare and complex genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain and impacts cognition, emotional regulation, muscle development, growth, metabolism, and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
November 9, 2018
SEPT 2018 – A Japanese research team, Koizumi et al, used dual-energy X-ray absorptiometry (DEXA scans) and abdominal computed tomography (CT scans) to compare the fat distribution between before ceasing GH treatment and 6 months and 12 months after the…
Read more ›July 2, 2018
JUNE 2018 – Results of the phase 2 carbetocin trial (oxytocin-like nasal spray) have been published and phase 3 is expected to begin later this year. Carbetocin is similar to oxytocin, but specifically targets only the oxytocin receptor which may…
Read more ›This is IPWSO’s 10th international Prader-Willi syndrome conference. These are held every 3 years, each time in a different country. The conference has 4 different programmes available: Clinical and Scientific, Parents & Family, Professional Caregivers and Providers, plus there will…
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