Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms which include impacts on: cognition, emotional regulation, growth, muscle development, metabolism and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
September 28, 2022
On the weekend of September 17th and 18th, our Young Families Weekend finally took place after unfortunate Covid-19 postponements – it was fantastic to be able to connect with others again in person. The weekend was attended by several families…
Read more ›April 29, 2022
MARCH 2022 – The prevalence rate of scoliosis in PWS has not been well established with figures ranging between 40% to 80% of patients in various studies and surveys. It is known that scoliosis typically increases with age, with occurrence…
Read more ›February 28, 2022
On International Rare Disease Day, PWSA(NZ) stands with Rare Disorders NZ calling for action from Government to commit to a National Health Strategy for Rare Disorders. Today, Rare Disorders NZ released their Voice of Rare Disorders survey 2021, the largest-ever…
Read more ›These meetings will generally take place on the last SUNDAY of each month at 7.30pm. Each month is for parents with children of a different age range, so there will be a meeting for each parent group every 3 months.…
Read more ›Our Zoom Chats are monthly facilitated social groups. They will mainly involve general chat about what everyone has been up to, but may also involve some games or discussion on a topic (we would let you know the topic beforehand…
Read more ›Our next Family Camp is taking place 10th – 12th March, 2023. It is being held at MiCamp Taupo. All registrations and contributions for the postponed 2022 camp are being rolled over to 2023 and new registrations are still welcome.…
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