Prader-Willi Syndrome (PWS) is a rare and complex genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain and impacts cognition, emotional regulation, muscle development, growth, metabolism, and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
July 2, 2018
JUNE 2018 – Results of the phase 2 carbetocin trial (oxytocin-like nasal spray) have been published and phase 3 is expected to begin later this year. Carbetocin is similar to oxytocin, but specifically targets only the oxytocin receptor which may…
Read more ›May 30, 2018
Thank you to all the families and carers who joined us at YMCA Camp Adair, Hunua, Auckland. We think it was our biggest camp yet with 93 people booked to attend on the Saturday! It was lovely to catch up…
Read more ›It is with great pleasure that the Australian and New Zealand Prader-Willi Syndrome Associations invite you to Brisbane in October 2018, to join us at the 4th Asia Pacific Prader-Willi Syndrome Conference. The conference theme is Inspire, Include, Empower which…
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