Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms which include impacts on: cognition, emotional regulation, growth, muscle development, metabolism and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
April 5, 2023
The supermarket shelves become increasingly full of chocolate Easter goodies in the weeks leading up to Easter (or even for months?) Anticipation about the treats that Easter may bring can create much excitement for all children, let alone individuals and…
Read more ›March 28, 2023
Our Family Camp finally took place after a 3 year gap due to Covid disruptions. It was lovely to return to MiCamp Taupō where the sunshine came out for us once again. The activities differed slightly to our previous camp,…
Read more ›October 21, 2022
Halloween is growing in popularity in Aotearoa New Zealand, making it increasingly difficult to avoid for those who choose not to participate. Fortunately, trick or treaters will usually only call on the houses that indicate they are participating by leaving…
Read more ›These meetings will generally take place on the last SUNDAY of each month at 7.30pm. Each month is for parents with children of a different age range, so there will be a meeting for each parent group every 3 months.…
Read more ›Our Zoom Chats were monthly facilitated social groups which were a place for a general catch-up and to enjoy playing some games together. They used to take place on the 1st and 2nd Saturdays of each month for different age…
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