Prader-Willi Syndrome (PWS) is a rare and complex genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain and impacts cognition, emotional regulation, muscle development, growth, metabolism, and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
December 23, 2018
NOV 2018 – In this study, Drs. Rice, Einfeld and Woodcock aimed to develop a comprehensive understanding of temper outbursts in PWS. A survey was developed from interviews conducted with individuals with PWS and their caregivers. The survey was completed by…
Read more ›November 9, 2018
SEPT 2018 – A Japanese research team, Koizumi et al, used dual-energy X-ray absorptiometry (DEXA scans) and abdominal computed tomography (CT scans) to compare the fat distribution between before ceasing GH treatment and 6 months and 12 months after the…
Read more ›Training for Residential Care Support Staff. Venue: IDEA Services Palmerston North offices. Time: Approx 10am – 3pm. Cost: $60+gst per person. Places are limited, please enquire. Registration is essential. To enquire and register, either email: Cindy@pws.org.nz or submit an enquiry via…
Read more ›This weekend is being held in Wellington at the Bay Plaza Hotel. Tweens and teens with PWS are able to attend with one parent / carer. This event focuses on supporting teenagers with PWS and their families. It will involve plenty…
Read more ›This weekend is being held in Christchurch at the Top 10 Holiday Park. Families who have a young child with PWS will have been invited. Please get in touch if you are not already a member and would be keen…
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