Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

What is Prader-Willi Syndrome?

Prader-Willi Syndrome (PWS) is a rare and complex genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.

PWS alters functioning of the hypothalamus in the brain and impacts cognition, emotional regulation, muscle development, growth, metabolism, and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›


Phase 2 carbetocin results are published, confirming positive results for hyperphagia and behaviour

July 2, 2018

JUNE 2018 – Results of the phase 2 carbetocin trial (oxytocin-like nasal spray) have been published and phase 3 is expected to begin later this year. Carbetocin is similar to oxytocin, but specifically targets only the oxytocin receptor which may…

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PWSA Family Camp – May 2018

May 30, 2018

Thank you to all the families and carers who joined us at YMCA Camp Adair, Hunua, Auckland. We think it was our biggest camp yet with 93 people booked to attend on the Saturday! It was lovely to catch up…

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