Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms which include impacts on: cognition, emotional regulation, growth, muscle development, metabolism and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›
February 28, 2022
On International Rare Disease Day, PWSA(NZ) stands with Rare Disorders NZ calling for action from Government to commit to a National Health Strategy for Rare Disorders. Today, Rare Disorders NZ released their Voice of Rare Disorders survey 2021, the largest-ever…
Read more ›February 2, 2022
JAN 2022 – A New Drug Application for LV-101 (intranasal carbetocin) was granted FDA Priority Review last year for the treatment of hyperphagia and behavioural symptoms in PWS, but ultimately, the review was unsuccessful as there were concerns about efficacy.…
Read more ›December 23, 2021
The build up to Christmas, the increased number of social events, and the holiday celebrations themselves can all cause additional anxiety for individuals with PWS and their families. Some tips to reduce stress on Christmas Day are: Plan ahead –…
Read more ›This will be IPWSO’s 11th international Prader-Willi syndrome conference. These are held every 3 years, each time in a different country. The conference usually has 4 different parrallel programmes available: Clinical and Scientific, Parents & Family, Professional Caregivers and Providers,…
Read more ›POSTPONED TO 2022 – Sept 17th and 18th Our Young Families Weekends are child-friendly, social get-togethers for parents of infants and young children with PWS – an opportunity to meet others, ask questions, share stories, information and advice. We also aim to provide relevant information and…
Read more ›These meetings will generally take place on the last SUNDAY of each month at 7.30pm. Each month is for parents with children of a different age range, so there will be a meeting for each parent group every 3 months.…
Read more ›
