Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

What is Prader-Willi Syndrome?

Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.

PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms which include impacts on: cognition, emotional regulation, growth, muscle development, metabolism and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›


Understanding and Planning for a Healthy Easter

April 5, 2023

The supermarket shelves become increasingly full of chocolate Easter goodies in the weeks leading up to Easter (or even for months?) Anticipation about the treats that Easter may bring can create much excitement for all children, let alone individuals and…

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PWSA Camp, Taupō – March 2023

March 28, 2023

Our Family Camp finally took place after a 3 year gap due to Covid disruptions. It was lovely to return to MiCamp Taupō where the sunshine came out for us once again. The activities differed slightly to our previous camp,…

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Tips for Managing Halloween in Prader-Willi Syndrome

October 21, 2022

Halloween is growing in popularity in Aotearoa New Zealand, making it increasingly difficult to avoid for those who choose not to participate. Fortunately, trick or treaters will usually only call on the houses that indicate they are participating by leaving…

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Asia Pacific PWS Conference 2024

- Sydney, Australia

The 6th Asia Pacific PWS Conference organising committee are pleased to invite you to this Prader-Willi Syndrome Conference being held at The Rydges Sydney Central Hotel, Friday 30th and Saturday 31st August 2024. Register now to take advantage of early…

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12th International PWS Conference

- United in Hope

IPWSO is partnering with Prader-Willi Syndrome Association USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) to host United in Hope – an International PWS Conference to be held June 24-28, 2025 in Phoenix, Arizona.The conference theme, “United…

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