Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

What is Prader-Willi Syndrome?

Prader-Willi Syndrome (PWS) is a rare and complex genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.

PWS alters functioning of the hypothalamus in the brain and impacts cognition, emotional regulation, muscle development, growth, metabolism, and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›

NEWS

The characteristics of temper outbursts in Prader-Willi syndrome

December 23, 2018

NOV 2018 – In this study, Drs. Rice, Einfeld and Woodcock aimed to develop a comprehensive understanding of temper outbursts in PWS. A survey was developed from interviews conducted with individuals with PWS and their caregivers. The survey was completed by…

Read more ›

Rapid increase in visceral fat (deep abdominal fat located around internal organs) and LDL cholesterol after the cessation of GH therapy

November 9, 2018

SEPT 2018 – A Japanese research team, Koizumi et al, used dual-energy X-ray absorptiometry (DEXA scans) and abdominal computed tomography (CT scans) to compare the fat distribution between before ceasing GH treatment and 6 months and 12 months after the…

Read more ›

EVENTS

PWS Training – Auckland

-

Training for Residential Care Support Staff. Venue: Spectrum Care Trust offices in Onehunga, Auckland. Cost: $60+gst per person. Places are very limited and the session may be full, please enquire. Registration is essential. To enquire and register, either email: Cindy@pws.org.nz…

Read more ›

PWSA(NZ) AGM 2019

-

You are welcome to attend our AGM which will be taking place in Auckland. Date: Saturday 23rd March Time: 3pm – 4pm Venue: Butterfly Creek Boardroom 10 Tom Pearce Drive, Auckland Airport

Read more ›

Christchurch Region Family Day

-

Save the date! Times to be confirmed. You are invited to a day out at Orana Wildlife Park for families who have a child with PWS, and for adults with PWS with family members or a support worker. More details…

Read more ›

PWSA FACEBOOK