Welcome to the Prader-Willi Syndrome Association of New Zealand
Freephone PWS Helpline: 0800 4PWS HELP | 0800 4797 4357

What is Prader-Willi Syndrome?

Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental, genetic disorder which occurs in around 1 in 16,000 births and affects approximately 200 New Zealanders.

PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms including impacts on cognition, emotional regulation, growth, muscle development, metabolism and appetite – most people with PWS are always hungry. Each individual is affected to varying degrees by each symptom. Learn more ›


Tweens and Teens Weekend 2021

July 9, 2021

At the end of May, we enjoyed a weekend in Wellington attended by 12 of our tweens and teens with an accompanying parent. Many of these teens know each other quite well now as ‘regulars’ at these events, but it’s…

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Leadership and Social Weekend for Adults with PWS

October 31, 2020

We invited our adult members with PWS to a Leadership and Social Weekend which was held Oct 16th – 18th 2020, at The Surrey Hotel in Auckland. The programme was aimed at developing advocacy and leadership skills and enabled us…

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PWSA Family Camp, Taupo – Feb/March 2020

March 30, 2020

Just a couple of weeks before our world changed momentously with the impact of Covid-19, we were able to enjoy a sunny weekend together on the alluring shores of Lake Taupo. It was the perfect site for our family camp,…

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5th Asia Pacific PWS Conference / Live Webinar 2021

- Oct 29th - 31st 2021


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Young Families Weekend 2021

- Sept 11th-12th 2021

Our Young Families Weekends are child-friendly, social get-togethers for parents of infants and young children with PWS – an opportunity to meet others, ask questions, share stories, information and advice. We also aim to provide relevant information and promote discussion on topics of interest to families. We…

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PWSA(NZ) Family Camp 2022

- March 11th-13th 2022

We are very excited to announce the date of our next family camp! This will be held 11th – 13th March, 2022 at MiCamp Taupo. Our family camps are open to people with PWS of all ages to attend with…

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