New Parent Resources
Parents – Get your New Parent Pack here!
Our New Parent Pack is free to families with a newly diagnosed child. It includes general information leaflets for friends and family, 2 Medical Alerts booklets, a copy of the Breastfeeding Your Baby with PWS booklet, and offers information on issues such as diet, growth hormone and support. Please complete a brief membership form to receive your family copy. Joining the PWSA(NZ) is free for families and you will also receive a free copy of Urs Eiholzer’s book ‘Prader-Willi Syndrome’ which provides a clear and easy to understand overview of the syndrome. Scroll down for further new parent resources…
NZ Prader-Willi Support Community (Parents)
A private Facebook group forming a support network for sharing experiences and seeking advice from each other. Open to all parents / primary carers of people with PWS in NZ.