IPWSO’s Clinical and Scientific Advisory Board have produced some excellent new guides for doctors and health practitioners to aid the medical evaluation of patients. They provide an overview of the most common and serious medical issues affecting people with PWS and have been written for 4 different age groups.
Families may wish to take these to appointments with them and we will certainly be planning to put these guides into our New Parent Pack and other resource packs.
- Infants (0-3) with Prader-Willi Syndrome
- Children (3-12) with Prader-Willi Syndrome
- Adolescents with Prader-Willi Syndrome
- Adults with Prader-Willi Syndrome
UPDATE Jan 2022: New one page resource factsheet by IPWSO: Important Medical Facts about PWS
UPDATE Sept 2022: Link above has been amended to link to IPWSO’s Aug 2022 updated version.