On the weekend of September 17th and 18th, our Young Families Weekend finally took place after unfortunate Covid-19 postponements - it was fantastic to be able to connect with others again in person. The weekend was attended by several families…
Together with the PWS Associations of Australia, Malaysia and Thailand, we held our first virtual conference in October 2021, which was also the first Asia Pacific conference to be co-organised by 4 countries. From attendee feedback received, it seems that…
JUNE 2021 - The International PWS Clinical Trials Consortium have produced consensus definitions and descriptions of the key behavioural features of PWS, with the aim of providing standardised measures for treatment studies. FPWR have produced the infographic to the right…
IPWSO's Clinical and Scientific Advisory Board have produced some excellent new guides for doctors and health practitioners to aid the medical evaluation of patients. They provide an overview of the most common and serious medical issues affecting people with PWS…
At the end of May, we enjoyed a weekend in Wellington attended by 12 of our tweens and teens with an accompanying parent. Many of these teens know each other quite well now as 'regulars' at these events, but it's…